Breaking free from the house!
Tuesday, July 10, 2012
GI testing
Today i had an upper endoscopy done early this morning. My GI problems are getting worse i can only eat 4 foods and drinking is really hard. my GI doctor has ordered a series of testing to figure out what the problem is. today i had a scope done to get pictures of my upper GI tract and esophagus. tomorrow i have a modified barium swallow to have a clear picture of how well i can swallow and where i choke also will show us what i can and cant swallow. im hoping that these two tests will give us insight as to what is wrong so we can fix it. bland mushy food is getting kinda old...
living with elhers danlose syndrome
i have decided for this blog to be my outlet for me to exspress my life with my elhers danlose syndrome.
i was diagnosed with eds 3 years ago. i grew up with alot of medical problems being born 24 weeks early leaves you with repercusions so naturally i grew up in the doctors office. i always had alot of pain that was dismisssed as being a drama queen or growing pains nobody paid mind to it. as i grew older in junior high my shoulders and knees started to dislocate alot i was always on and off cruches and boot casts... the 2nd semester of my sophmore year my health really took a nose dive and thus i embarked into a spiroling mind boggoling search as to what was wrong with me. i went from doctor to doctor being poked prodded questinosed streched squeesed pulled and tested as though i was a lab rat not a human going through high school and having no energy to do my work in excroshiating pain and no idea what was happening to me. my migrain speshalist finally listened to what i had to say she told me she thought i might have eds so i went to a genetic speshalist where i was questioned streched bended and pulled once more and it was confirmed that i have a degeneritive conditon that can not be cured and there is very little to help me. if i have chilidren i can pass it on to them and cause them to have this horrible condition grow up in agony and lonesome life.
elhers danlose syndrome is genetic and degeneritive condition it causes your conective tissue to be lose and that makes you dislocate and have bad muscles. the only thing that helps is physical tharopy and sometimes medisons such as nuroton or lyrica can help. most doctors dont know what it is and there is little that they can do for you. as you get older the more you dislocate creating more agony for you to be in. you dont have time for dating or hanging out with friends because you hurt so bad and are so tired. if im not in teh doctors office i often am lieing down with high pain and am exosted. i feel like a hurmit that cant come out of its shell.
i need help doing simple things like getting out of bed puting cloths on showering rolling over. life for me is really hard i want so much to make a differnce in this world to live and to love for god alone. i dont want my EDS to ensnare me from that. for the past 3 years i faught to graduate high school and although it was really hard i was out sick a lot and in and out of the hospital. the last couple mounths of my senior year i went to home bound school and by the grace of God i graduated. some times i want to give up but there is a deep drive in me to press on to not let my EDS dictate to me. i want to fulfill all my dreams even if it takes a long time im determind to live life as best can.
i was diagnosed with eds 3 years ago. i grew up with alot of medical problems being born 24 weeks early leaves you with repercusions so naturally i grew up in the doctors office. i always had alot of pain that was dismisssed as being a drama queen or growing pains nobody paid mind to it. as i grew older in junior high my shoulders and knees started to dislocate alot i was always on and off cruches and boot casts... the 2nd semester of my sophmore year my health really took a nose dive and thus i embarked into a spiroling mind boggoling search as to what was wrong with me. i went from doctor to doctor being poked prodded questinosed streched squeesed pulled and tested as though i was a lab rat not a human going through high school and having no energy to do my work in excroshiating pain and no idea what was happening to me. my migrain speshalist finally listened to what i had to say she told me she thought i might have eds so i went to a genetic speshalist where i was questioned streched bended and pulled once more and it was confirmed that i have a degeneritive conditon that can not be cured and there is very little to help me. if i have chilidren i can pass it on to them and cause them to have this horrible condition grow up in agony and lonesome life.
elhers danlose syndrome is genetic and degeneritive condition it causes your conective tissue to be lose and that makes you dislocate and have bad muscles. the only thing that helps is physical tharopy and sometimes medisons such as nuroton or lyrica can help. most doctors dont know what it is and there is little that they can do for you. as you get older the more you dislocate creating more agony for you to be in. you dont have time for dating or hanging out with friends because you hurt so bad and are so tired. if im not in teh doctors office i often am lieing down with high pain and am exosted. i feel like a hurmit that cant come out of its shell.
i need help doing simple things like getting out of bed puting cloths on showering rolling over. life for me is really hard i want so much to make a differnce in this world to live and to love for god alone. i dont want my EDS to ensnare me from that. for the past 3 years i faught to graduate high school and although it was really hard i was out sick a lot and in and out of the hospital. the last couple mounths of my senior year i went to home bound school and by the grace of God i graduated. some times i want to give up but there is a deep drive in me to press on to not let my EDS dictate to me. i want to fulfill all my dreams even if it takes a long time im determind to live life as best can.
Subscribe to:
Comments (Atom)